Cluster headaches are either rated as a residual of TBI (code 8045) or Migranes (code 8100)I know how you feel. I was diagnosed with cluster headaches by 2 doctor my neurologist and neuro surgeon, due to nerve damage in my neck for several discs and nerve damage at serveral locations causing daily headaches. I know exactly what you mean. Headaches so bad you feel like it's your worst hangover ever, but you didn't drink. For me my biggest issue is noises kill me when I have my headaches. Like a dripping faucet would make me scream.
I don't know why they won't except the diagnosis...
8100 Migraine:
With very frequent completely prostrating and prolonged attacks productive of severe economic inadaptability 50%
With characteristic prostrating attacks occurring on an average once a month over last several months................................................30%
With characteristic prostrating attacks averaging one in 2 months over last several months %10
With less frequent attacks %0