MEB and Ratings for rare autoimmune condition

SageSafari03

New Member
Registered Member
Hey all,
I was diagnosed with a rare autoimmune disease about 2 years ago. Referred to the MEB in NOV2020 and just got my proposed ratings. However, I think I got rated for the wrong condition but I can't tell for sure. I'll be submitting a rebuttal, but I'd like some opinions on my case.

Diagnosis: granulomatosis with polyangiitis -- A type of Vasculitis or systemic inflammation of the blood vessels, also called Wegener's granulomatosis
Rated for: 20% --- Granulomatous rhinitis (6524) -- Inflammation of the nose

I believe I should've been rated for: 60% (7826) Vasculitis, primary cutaneous because the description and the overall diagnosis fits this rating better due to Persistent documented vasculitis episodes refractory to continuous immunosuppressive therapy (I had a flare up symptoms even with medication and the doctor increased my dosage of Methotrexate). The current proposed rating does not take into account the fact that my condition is systemic, not just focused on the nose or the respiratory organs.

My thought is that I was rated under Granulomatous rhinitis because there is a rating of 100% for Wegener's granulomatosis, lethal midline granuloma under it, which matches the specific name of my illness. Under this rating I would not be able to get above 20% rating unless my face/nose was essentially destroyed, which doesn't quite sound right.


Schedule of ratings:

7826 Vasculitis, primary cutaneous:
Persistent documented vasculitis episodes refractory to continuous
immunosuppressive therapy........................................................................................ 60
All of the following..................................................................................................... 30
Recurrent documented vasculitic episodes occurring four or more times
over the past 12-month period; and Requiring intermittent systemic
immunosuppressive therapy for control...................................................................... 30
At least one of the following....................................................................................... 10
Recurrent documented vasculitic episodes occurring one to three times
over the past 12-month period, and requiring intermittent systemic
immunosuppressive therapy for control; or
Without recurrent documented vasculitic episodes but requiring continuous
systemic medication for control.
Or rate as disfigurement of the head, face, or neck (DC 7800) or scars (DCs 7801,
7802, 7804, or 7805), depending upon the predominant disability


6524 Granulomatous rhinitis:
Wegener's granulomatosis, lethal midline granuloma 100
Other types of granulomatous infection 20
 
Hey all,
I was diagnosed with a rare autoimmune disease about 2 years ago. Referred to the MEB in NOV2020 and just got my proposed ratings. However, I think I got rated for the wrong condition but I can't tell for sure. I'll be submitting a rebuttal, but I'd like some opinions on my case.

Diagnosis: granulomatosis with polyangiitis -- A type of Vasculitis or systemic inflammation of the blood vessels, also called Wegener's granulomatosis
Rated for: 20% --- Granulomatous rhinitis (6524) -- Inflammation of the nose

I believe I should've been rated for: 60% (7826) Vasculitis, primary cutaneous because the description and the overall diagnosis fits this rating better due to Persistent documented vasculitis episodes refractory to continuous immunosuppressive therapy (I had a flare up symptoms even with medication and the doctor increased my dosage of Methotrexate). The current proposed rating does not take into account the fact that my condition is systemic, not just focused on the nose or the respiratory organs.

My thought is that I was rated under Granulomatous rhinitis because there is a rating of 100% for Wegener's granulomatosis, lethal midline granuloma under it, which matches the specific name of my illness. Under this rating I would not be able to get above 20% rating unless my face/nose was essentially destroyed, which doesn't quite sound right.


Schedule of ratings:

7826 Vasculitis, primary cutaneous:
Persistent documented vasculitis episodes refractory to continuous
immunosuppressive therapy........................................................................................ 60
All of the following..................................................................................................... 30
Recurrent documented vasculitic episodes occurring four or more times
over the past 12-month period; and Requiring intermittent systemic
immunosuppressive therapy for control...................................................................... 30
At least one of the following....................................................................................... 10
Recurrent documented vasculitic episodes occurring one to three times
over the past 12-month period, and requiring intermittent systemic
immunosuppressive therapy for control; or
Without recurrent documented vasculitic episodes but requiring continuous
systemic medication for control.
Or rate as disfigurement of the head, face, or neck (DC 7800) or scars (DCs 7801,
7802, 7804, or 7805), depending upon the predominant disability


6524 Granulomatous rhinitis:
Wegener's granulomatosis, lethal midline granuloma 100
Other types of granulomatous infection 20
I think its the correct code. I wish there wasn't a schedule for it because then you would be right about the Vasculitis. I would try to get it changed regardless or maybe adding Vasculitis instead since you have symptoms that affect more than just your sinuses. I would consult with your Dr. & assigned IDES legal representation to get their opinion. Since the difference between severance and retirement is big I would also reach out to some private attorney's to get their opinion if they could help. Private attorney's that are dedicated to working on IDES cases are rare but often times the best route if you can afford it and if they can help you with your case.
 
I think its the correct code. I wish there wasn't a schedule for it because then you would be right about the Vasculitis. I would try to get it changed regardless or maybe adding Vasculitis instead since you have symptoms that affect more than just your sinuses. I would consult with your Dr. & assigned IDES legal representation to get their opinion. Since the difference between severance and retirement is big I would also reach out to some private attorney's to get their opinion if they could help. Private attorney's that are dedicated to working on IDES cases are rare but often times the best route if you can afford it and if they can help you with your case.

Thank you for your answer. Here is one more fact:
the MEB asked for a DBQ for clarification (because GPA is rare), and the doctor specifically said:
"I am unable to diagnose Granulomatous rhinitis, Rhinscleroma and lethal midline granuloma as these require more sophisticated testing and perhaps ENT follow up."

So, can the VA rate my diagnosed condition (GPA/vasculitis) with the schedule of an undiagnosed condition (Granulomatous rhinitis)?
 
Thank you for your answer. Here is one more fact:
the MEB asked for a DBQ for clarification (because GPA is rare), and the doctor specifically said:
"I am unable to diagnose Granulomatous rhinitis, Rhinscleroma and lethal midline granuloma as these require more sophisticated testing and perhaps ENT follow up."

So, can the VA rate my diagnosed condition (GPA/vasculitis) with the schedule of an undiagnosed condition (Granulomatous rhinitis)?
With that additional information your definitely onto something! This process screws people if they're not prepared and proactive. So make sure you reach out to everyone and try to get this fixed early in the process!
 
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